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An occupational perspective of the lived experience of familial dementia caregivers : a thematic review of qualitative literature

Hooper, E and Collins, T 2016, 'An occupational perspective of the lived experience of familial dementia caregivers : a thematic review of qualitative literature' , Dementia: The International Journal of Social Research and Practice .

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Abstract

Dementia caregiving is thought to have a negative impact on health and wellbeing. This critical review of qualitative literature explored the lived experience of familial dementia caregivers from an occupational therapy perspective. The method was informed by systematic review and qualitative research methodologies and was structured within the occupational dimensions framework of doing-being-becoming-belonging. A comprehensive search of major databases was undertaken which identified 484 studies on the topic; 14 met the inclusion criteria and were included in the review. Ten themes emerged within the doing-being-becoming-belonging framework from the analysis of the studies. The occupational participation of caregivers is conveyed within the ‘doing’ domain. Ways in which caregiving impacts upon opportunities for self-nurture are presented within the ‘being’ domain. The ‘becoming’ domain elucidates ways in which caregivers redefine themselves, their values and their priorities through their caregiving role. The ‘belonging’ domain depicts ways in which caregivers’ connections with their care recipient and others are shaped over time. Practice implications for health and social care practitioners who work with familial dementia caregivers are presented in light of the findings.

Item Type: Article
Schools: Schools > School of Health Sciences > Centre for Health Sciences Research
Journal or Publication Title: Dementia: The International Journal of Social Research and Practice
Publisher: SAGE Publications
ISSN: 1471-3012
Related URLs:
Funders: Non funded research
Depositing User: T Collins
Date Deposited: 09 Sep 2016 09:01
Last Modified: 10 Oct 2016 10:14
URI: http://usir.salford.ac.uk/id/eprint/40075

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