Measuring patients' preferences and priorities for information in chronic kidney disease

Ormandy, P ORCID: and Hulme, C 2013, 'Measuring patients' preferences and priorities for information in chronic kidney disease' , Information Research, 18 (3) .

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Objective: To evaluate an information needs questionnaire that uses a Thurstone’s paired comparison approach to measure the information needs of patients with chronic kidney disease.
Methods: A two-phased, cross-sectional survey that sequentially develops and tests the questionnaire. Semi-structured interviews (n=20) generated information needs items for inclusion in the questionnaire. These items were paired using Ross’s matrix. The questionnaire was used in interviews in phase two (n=89) and paired comparison analysis was undertaken.
Results: A majority of patients ranked highly self-care information, how to manage their own condition, better control their diet and fluid intake, and understand blood results. 70.79% of patients agreed all items in the questionnaire to be relevant; there was an acceptable degree of reliability for data scalability (R2 =0.6175); agreement found between patients (Kendall’s coefficient 0.06, p<0.001); and all patients’ responses were deemed consistent (circular triads >30). Despite this, there was not a good fit between data and Case V and Case III models (Mosteller χ2=52.21, p=0.003, χ2=49.49 p<0.001 respectively).
Conclusion: Using this approach it is possible to identify and measure the strengths of preferences for information of chronic kidney disease patients. Further testing with a larger sample to examine the internal consistency and scalability of the data is required.

Item Type: Article
Themes: Health and Wellbeing
Schools: Schools > School of Health and Society
Journal or Publication Title: Information Research
Publisher: University of Borås, Sweden
Refereed: Yes
Related URLs:
Funders: British Renal Society
Depositing User: Professor Paula Ormandy
Date Deposited: 01 May 2018 13:24
Last Modified: 27 Aug 2021 20:09

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