Manskow, UM, Friborg, O, Roe, C, Braine, ME 
ORCID: https://orcid.org/0000-0002-3785-6166, Damsgard, E and Anke, A
2017,
'Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury : a Norwegian longitudinal study'
, NeuroRehabilitation, 40 (2)
, pp. 211-222.
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Abstract
Objectives: To assess burden and life satisfaction in caregivers of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, to examine if change in burden can be predicted by caregiver and patient demographics, patient’s functional status, caregiver’s social network or caregiver’s level of burden at 1 year. Design: Prospective national multicenter study. Self-report from caregivers, patient data collected from a national cohort study on patients with sTBI. Participants: 80 caregivers. Main outcome measure: The Caregiver Burden Scale (CBS), life satisfaction. Results: The total caregiver burden increased significantly between years 1 and 2 post-injury (p=0.04). Life Satisfaction was significantly lower at 2 years follow-up (p=0.03) than at 1 year. Thirty percent of the caregivers reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR=4.35, p<0.05). Conclusions: The results demonstrate a need for long-term follow-up of patients and caregivers that particularly focuses on professional support to relieve caregiver burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.
| Item Type: | Article |
|---|---|
| Schools: | Schools > School of Health and Society |
| Journal or Publication Title: | NeuroRehabilitation |
| Publisher: | IOS Press |
| ISSN: | 1053-8135 |
| Related URLs: | |
| Funders: | Norwegian Regional Health Authorities |
| Depositing User: | Dr Mary E. Braine |
| Date Deposited: | 09 Aug 2016 07:26 |
| Last Modified: | 11 Feb 2020 13:00 |
| URI: | http://usir.salford.ac.uk/id/eprint/39662 |
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