Methods for studying information provision, networking and communication in patient support groups

Vasilica, CM ORCID: and Ormandy, P ORCID: 2017, 'Methods for studying information provision, networking and communication in patient support groups' , in: Information Systems : Process and practice , Facet Publishing, London, UK, pp. 205-233.

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Access Information: This is a preprint of a chapter accepted for publication by Facet Publishing. This extract has been taken from the author’s original manuscript and has not been edited. The definitive version of this piece may be found in Information Systems : Process and practice (2017) Facet, London. ISBN: 9781783302413 which can be purchased from The author agrees not to update the preprint or replace it with the published version of the chapter. Our titles have wide appeal across the UK and internationally and we are keen to see our authors content translated into foreign languages and welcome requests from publishers. World rights for translation are available for many of our titles. To date our books have been translated into over 25 languages.


The chapter discusses the design and development of an online patient support group for renal patients, where co-creation of information was vital. The chapter covers the identification of information needs for this group, how users might engage with the website, an evaluation of the website that demonstrated levels of engagement, and how activity theory contributed to an understanding of the way the information might lead to better patient outcomes.

Item Type: Book Section
Editors: Urquhart, C, Hamad, F, Tbaishat, D and Yeoman, A
Schools: Schools > School of Health and Society > Centre for Applied Research in Health, Welfare and Policy
Publisher: Facet Publishing
ISBN: 9781783302437
Related URLs:
Depositing User: CM Vasilica
Date Deposited: 22 Feb 2018 09:37
Last Modified: 15 Feb 2022 22:54

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