Schoultz, M 
ORCID: https://orcid.org/0000-0003-3780-8110, Macaden, L and Watson, A
2016,
'Co-designing inflammatory bowel disease
(Ibd) services in Scotland : findings from a
nationwide survey'
, BMC Health Services Research, 16 (231)
.
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Abstract
Background: The Scottish Government’s ambition is to ensure that health services are co-designed with the
communities they serve. Crohn’s and Colitis UK and the Scottish Government acknowledged the need to review
and update the current IBD care model. An online survey was conducted asking IBD patients about their
experiences of the NHS care they receive. This survey was the first step of co-designing and developing a national
strategy for IBD service improvement in Scotland.
Aim: To explore IBD patients’ experiences of current services and make recommendations for future service
development.
Methods: This study was part of a wider cross-sectional on-line survey. Participants were patients with IBD across
Scotland. 777 people with IBD took part in the survey. Thematic analysis of all data was conducted independently
by two researchers.
Results: Three key themes emerged:
Quality of life: Participants highlighted the impact the disease has on quality of life and the desperate need for IBD
services to address this more holistically.
IBD clinicians and access: Participants recognised the need for more IBD nurses and gastroenterologists along with
better access to them. Those with a named IBD nurse reported to be more satisfied with their care.
An explicit IBD care pathway: Patients with IBD identified the need of making the IBD care pathway more explicit to
service users.
Conclusions: Participants expressed the need for a more holistic approach to their IBD care. This includes
integrating psychological, counselling and dietetic services into IBD care with better access to IBD clinicians and a
more explicit IBD care pathway.
Keywords: Inflammatory bowel disease, Co-designing, Qualitative study, Patient survey, Crohn’s disease, Ulcerative colitis
| Item Type: | Article |
|---|---|
| Schools: | Schools > School of Health and Society |
| Journal or Publication Title: | BMC Health Services Research |
| Publisher: | BioMed Central |
| ISSN: | 1472-6963 |
| Related URLs: | |
| Funders: | Crohns and Colitis UK and Scottish Govenrment |
| Depositing User: | Dr Mariyana Schoultz |
| Date Deposited: | 24 Apr 2018 12:58 |
| Last Modified: | 27 May 2020 09:15 |
| URI: | http://usir.salford.ac.uk/id/eprint/46833 |
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