A co-designed social media intervention to satisfy information needs and improve outcomes in patients with chronic kidney disease: a longitudinal study

Vasilica, CM ORCID: https://orcid.org/0000-0002-3012-1087, Brettle, AJ ORCID: https://orcid.org/0000-0002-4120-1752 and Ormandy, P ORCID: https://orcid.org/0000-0002-6951-972X 2019, 'A co-designed social media intervention to satisfy information needs and improve outcomes in patients with chronic kidney disease: a longitudinal study' , JMIR Formative Research . (In Press)

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Abstract

Background The number of people living with a long-term condition is increasing worldwide. Social media offers opportunities for patients to exchange information and experiences with others with the same condition, potentially leading to better self-management and improved patient outcomes, at minimal costs to health service providers. Objective This paper describes how an online network with a range of social media platforms was created, with the help of a group of patients with chronic kidney disease, and specialist professionals. The project evaluation considered whether information needs and health-related and social outcomes were met. Methods Longitudinal in-depth evaluation of the creation of the moderated network; observation of the use of the platforms; self-efficacy surveys (baseline and 6 months); semistructured interviews (at baseline and 6 months). Results 15 patients and professionals participated in the co-design of the network (hub), initially launched with 50 patients. Several platforms were needed to engage patients at different levels, and encourage generation of information, with the support of moderators. 14 separate patients participated in the evaluation. Satisfaction of information needs through social engagement improved self-efficacy (in 13 participants) with better self-care and management of illness. Social outcomes included seeking employment and an increase in social capital. Conclusion: An online network (hub) with several social media platforms helped patients with chronic kidney disease to manage their condition. Careful design with users resulted in a sustainable network with wider applicability across health and social care.

Item Type: Article
Schools: Schools > School of Health and Society > Centre for Applied Research in Health, Welfare and Policy
Journal or Publication Title: JMIR Formative Research
Publisher: JMIR
ISSN: 2561-326X
Depositing User: USIR Admin
Date Deposited: 16 Sep 2019 07:18
Last Modified: 16 Sep 2019 08:00
URI: http://usir.salford.ac.uk/id/eprint/52412

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