A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy

Morgan, R, Estlin, E, Pizer, B, Keane, J, Bowyer, P, Nenadic, G, Kamaly-Asl, I, Davys, D ORCID: https://orcid.org/0000-0002-4785-0972, Owen, K, Galloway, P, Fillery, C, Deghan, A and Long, T ORCID: https://orcid.org/0000-0003-2726-8798 2020, 'A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy' , CYPF Journal . (In Press)

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Abstract

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to inform goal-setting, treatment-planning and intervention. A professional decision-making log was developed to focus reflection and to enhance communication of clinical decisions. The impact of a range of personal and environmental factors on participation beyond performance components was considered, enabling the occupational therapists to incorporate the child’s strengths to overcome daily occupational challenges. Twenty-four children aged 3-14 years with central nervous system tumours received enhanced occupational therapy for six months which families perceived as being helpful in rehabilitating children to participate in life and equipping them with better coping strategies for the future. Individual occupational needs of children were highlighted using the SCOPE which helped to standardise practice. Using the SCOPE harmonised occupational therapists’ unique focus on occupation in their practice with patients with brain tumours. This both evidenced intervention outcomes and strengthened professional identity. The outcome was robust preparation for a multi-centre intervention study. Keywords Occupational therapy, children, brain tumour, harmonised practice, SCOPE

Item Type: Article
Schools: Schools > School of Health and Society > Centre for Health Sciences Research
Schools > School of Health and Society > Centre for Applied Research in Health, Welfare and Policy
Journal or Publication Title: CYPF Journal
Publisher: Royal College of Occupational Therapists Specialist Section - Children, Young People and Families
ISSN: 1754-0062
Related URLs:
Funders: NIHR Research for Patient benefit
Depositing User: Professor Tony Long
Date Deposited: 12 Jun 2020 13:20
Last Modified: 15 Jun 2020 07:02
URI: http://usir.salford.ac.uk/id/eprint/57112

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