Psychosocial needs of adolescents and young adults with eczema : a secondary analysis of qualitative data to inform a behaviour change intervention

Ghio, D ORCID: https://orcid.org/0000-0002-0580-0205, Greenwell, K, Muller, I, Roberts, A, McNiven, A and Santer, M 2020, 'Psychosocial needs of adolescents and young adults with eczema : a secondary analysis of qualitative data to inform a behaviour change intervention' , British Journal of Health Psychology .

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Abstract

Objectives: This study aimed to explore adolescents and young adults’ experiences of symptoms related to their eczema in order to determine their psychosocial needs.
Design: A secondary qualitative analysis of two data sources collected through semi‐structured interviews for two different projects, SKINS project and Eczema Care Online project.
Methods: In total, there were 28 transcripts with adolescents and young adults with eczema having a mean age of 19.5 years available to analyse. Interview data were collected from face‐to‐face interviews that were recorded and transcribed. Inductive thematic analysis explored data about symptoms and organized according to psychosocial needs.
Results: Adolescents and young adults with eczema experience both visible symptoms (such as flaky, dry, and inflamed skin) and invisible symptoms (such as itch, pain, exhaustion, and mental distress) that elicit different psychosocial needs. These psychosocial needs are to (i) be understood; (ii) be perceived as normal; and (iii) receive emotional support. Interviewees described a struggle between wanting their peers and family to understand but take their eczema seriously whilst not wanting to stand out and instead to be perceived as ‘normal’, which they would define as being perceived as other adolescents. This has implications on behaviours, such as seeking support, avoiding going out, hiding their skin, as well as emotional implications, such as social isolation and feeling anxious and low.
Conclusions: Having a better understanding of young people’s experiences and psychosocial needs will provide a framework on how best to support adolescents and young adults when managing symptoms related to eczema.

Item Type: Article
Schools: Schools > School of Health and Society > Centre for Health Sciences Research
Schools > School of Health and Society > Centre for Applied Research in Health, Welfare and Policy
Journal or Publication Title: British Journal of Health Psychology
Publisher: Wiley
ISSN: 1359-107X
Related URLs:
Funders: National Institute for Health Research (NIHR) Programme Grants for Applied Research
Depositing User: Dr Daniela Ghio
Date Deposited: 26 Aug 2020 13:05
Last Modified: 26 Aug 2020 13:15
URI: http://usir.salford.ac.uk/id/eprint/58056

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