A profile of patients with postural tachycardia syndrome and their experience of healthcare in the UK

Kavi, L, Nuttall, M, Low, DA, Opie, M, Nicholson, LM, Caldow, EJ ORCID: https://orcid.org/0000-0002-8466-7157 and Newton, JL 2016, 'A profile of patients with postural tachycardia syndrome and their experience of healthcare in the UK' , The British Journal of Cardiology, 23 , p. 33.

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Abstract

Postural tachycardia syndrome (PoTS) is a recently recognised condition that usually affects younger women, who develop symptoms of orthostatic intolerance and a persistent tachycardia on standing upright. Healthcare professionals, patients and the national patient support group (PoTS UK) together created a survey, and the responses of 779 UK PoTS patients were analysed. The most common symptoms of PoTS at presentation were the triad of fatigue, lightheadedness and palpitations. Mobility, ability to work or attend education, and quality of life were significantly restricted. Cardiologists, followed by patients, were most likely to be the first to suggest the diagnosis of PoTS. Patients waited a mean of almost four years from presentation to obtain their diagnosis and, meantime, psychiatric mislabeling was common. Advice given to patients regarding lifestyle changes was variable, and those referred to specialist practitioners for help, found practitioners had limited knowledge about management of PoTS. Increased education of healthcare professionals and improved services for patients are recommended.

Item Type: Article
Schools: Schools > School of Health and Society
Journal or Publication Title: The British Journal of Cardiology
Publisher: Medinews Cardiology Ltd
ISSN: 0969-6113
Related URLs:
Depositing User: Eddie Caldow
Date Deposited: 04 May 2021 10:53
Last Modified: 04 May 2021 10:53
URI: http://usir.salford.ac.uk/id/eprint/60166

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