McCarthy, RE, Blackburn, C, Mukherjee, RAS, Fleming, K, Allely, CS 
ORCID: https://orcid.org/0000-0001-7640-9505, Kirby, L and Cook, PA ORCID: https://orcid.org/0000-0001-6435-8050
2022,
'‘I'm always up against a brick wall with them’ : parents' experiences of accessing support for their child with a newly recognised developmental disorder'
, British Journal of Special Education, 49 (1)
, pp. 41-63.
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Abstract
Three of the most prevalent developmental disorders (DDs) are autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD) and fetal alcohol spectrum disorder (FASD). As part of a study screening for DDs in Greater Manchester, UK, a unique opportunity was taken to explore parents' experiences of receiving reports about their child's previously unrecognised DD. Six parents out of a possible 16 took part in interviews, which were analysed thematically. Findings drawn from parental responses revealed a number of barriers to accessing support for their child's additional needs, including perceived resistance from schools, particularly for quiet, well-behaved girls, and difficulty in accessing assessment or referrals. There needs to be greater awareness of additional needs in children without externalising behaviours, the presence of gender-specific differences in the presentation of DDs, and FASD as a commonly occurring DD. Ultimately, better support for children with DDs would reduce the burden of unmet needs for the children and their families, and for wider services.
| Item Type: | Article |
|---|---|
| Schools: | Schools > School of Health and Society |
| Journal or Publication Title: | British Journal of Special Education |
| Publisher: | Wiley |
| ISSN: | 0952-3383 |
| Related URLs: | |
| Depositing User: | USIR Admin |
| Date Deposited: | 02 Mar 2022 10:36 |
| Last Modified: | 25 Mar 2022 14:07 |
| URI: | http://usir.salford.ac.uk/id/eprint/63286 |
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