‘I'm always up against a brick wall with them’ : parents' experiences of accessing support for their child with a newly recognised developmental disorder

McCarthy, RE, Blackburn, C, Mukherjee, RAS, Fleming, K, Allely, CS ORCID: https://orcid.org/0000-0001-7640-9505, Kirby, L and Cook, PA ORCID: https://orcid.org/0000-0001-6435-8050 2022, '‘I'm always up against a brick wall with them’ : parents' experiences of accessing support for their child with a newly recognised developmental disorder' , British Journal of Special Education, 49 (1) , pp. 41-63.

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Abstract

Three of the most prevalent developmental disorders (DDs) are autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD) and fetal alcohol spectrum disorder (FASD). As part of a study screening for DDs in Greater Manchester, UK, a unique opportunity was taken to explore parents' experiences of receiving reports about their child's previously unrecognised DD. Six parents out of a possible 16 took part in interviews, which were analysed thematically. Findings drawn from parental responses revealed a number of barriers to accessing support for their child's additional needs, including perceived resistance from schools, particularly for quiet, well-behaved girls, and difficulty in accessing assessment or referrals. There needs to be greater awareness of additional needs in children without externalising behaviours, the presence of gender-specific differences in the presentation of DDs, and FASD as a commonly occurring DD. Ultimately, better support for children with DDs would reduce the burden of unmet needs for the children and their families, and for wider services.

Item Type: Article
Schools: Schools > School of Health and Society
Journal or Publication Title: British Journal of Special Education
Publisher: Wiley
ISSN: 0952-3383
Related URLs:
Depositing User: USIR Admin
Date Deposited: 02 Mar 2022 10:36
Last Modified: 17 Aug 2022 10:04
URI: https://usir.salford.ac.uk/id/eprint/63286

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