Research priorities for UK pediatric critical care in 2019 : healthcare professionals’ and parents’ perspectives

Tume, LN ORCID:, Menzies, JC, Ray, S and Scholefield, BR 2021, 'Research priorities for UK pediatric critical care in 2019 : healthcare professionals’ and parents’ perspectives' , Pediatric Critical Care Medicine, 22 (5) , e294-e301.

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Objective: The Paediatric Intensive Care Society Study Group conducted a research prioritization exercise with the aim to identify and agree research priorities in Pediatric Critical Care in the United Kingdom (UK) both from a healthcare professional (HCP) and parent/caregiver perspective. Design: A modified three round e-Delphi survey, followed by a survey of parents of the top 20 HCP priorities Setting: UK PICUs Population: UK Pediatric Intensive Care Unit (PICU) HCP who are members of the professional society and parents and family members of children, with experience of a UK PICU admission Interventions: None Main outcome measures: A list of HCP and parent research priorities for PICU in the UK. Results: Forty-nine HCP submitted topics in round one, 98 participated in round two and 102 in round three. These topics were categorized into eight broad domain areas, and within these there were 73 specific topics in round two. At round three, 18 topics had a mean score < 5.5 and were removed, leaving 55 topics for ranking in round three. Ninety-five parents and family members completed the surveys from at least 17 UK PICUs. Both parents and HCP prioritized research topics associated with the PICU workforce. HCP research priorities reflected issues which impacted on day to day management and practice. Parents’ prioritized research addressing acute situations such as infection identification of and sepsis management, or research addressing long term outcomes for children and parents after critical illness. Parents prioritized research into longer term outcomes more than HCP. Parental responses showed clear support for the concept of research in PICU, but few novel research questions were proposed. Conclusion: This is the first research prioritization exercise within UK PICU setting to include parents and families’ perspectives and compare these to HCP. Results will guide both funders and future researchers.

Item Type: Article
Schools: Schools > School of Health and Society > Centre for Health Sciences Research
Journal or Publication Title: Pediatric Critical Care Medicine
Publisher: Lippincott, Williams & Wilkins
ISSN: 1529-7535
Related URLs:
Depositing User: Dr Lyvonne Tume
Date Deposited: 09 Nov 2020 12:11
Last Modified: 15 Feb 2022 16:37

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