Beyond the shrinking world : dementia, localisation and neighbourhood

Ward, R, Rummery, K, Odzakovic, E, Manji, K, Kullberg, A, Keady, J, Clark, AJ ORCID: and Campbell, S 2021, 'Beyond the shrinking world : dementia, localisation and neighbourhood' , Ageing and Society , pp. 1-22.

PDF - Published Version
Available under License Creative Commons Attribution 4.0.

Download (305kB) | Preview
[img] HTML - Published Version
Restricted to Repository staff only

Download (876kB) | Request a copy


‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

Item Type: Article
Schools: Schools > School of Health and Society > Centre for Applied Research in Health, Welfare and Policy
Journal or Publication Title: Ageing and Society
Publisher: Cambridge University Press
ISSN: 0144-686X
Related URLs:
Funders: Economic and Social Research Council (ESRC), National Institute for Health Research (NIHR)
Depositing User: AJ Clark
Date Deposited: 23 Mar 2021 14:47
Last Modified: 16 Feb 2022 06:55

Actions (login required)

Edit record (repository staff only) Edit record (repository staff only)


Downloads per month over past year